Well, weaning off of Keppra is proving to be- not useful. She is down to 250 which would make you think she wouldn't sleep as much as she did on 1500mg. Wrong. Still very sleepy. Went to sleep around 10:00 this morning. I'm not sure what I'm going to do now. Keep weaning off of the Keppra down to zero and then watch. I have a feeling the sleep specialist is in our very near future. Was hoping to hear back from the doctor about the next steps but it looks like I need to call him myself.
Never ending story with her. Wishing.... Wishing I could make this all go away. I don't want our next step to be VNS.
Comforts of Home
1 week ago