I feel overwhelmed and I'm not sure which side is up. Emily took another 3 hour nap today. Obviously not medicine related this constant daytime sleepiness. She hasn't had a seizure in 3 days which we are thankful. Not to be the big "butter" on this blog... BUT she still slept for 3 hours. She is much more alert when she is awake but she is NOT awake very often.
It's just a never ending cycle of crap ola.... Dr. W isn't sure which way to go, Children's doesn't think we are important enough, our pediatrician is in the middle. We have two issues- daytime sleepiness and breakthrough seizures. The daytime sleepiness has gotten exceedingly worse as the year has progresses. Time to solve this. Time to move on to the solution and not just provide band-aids.
Comforts of Home
5 weeks ago